How can I find a genetics professional in my area ?

To find a genetics professional in your community, you may wish to ask your doctor for a referral. If you have health insurance, you can also contact your insurance company to find a medical geneticist or genetic counselor in your area who participates in your plan.
Several organizations have tips for finding a healthcare professional:
• The Genetic and Rare Diseases Information Center, a service of the National Institutes of Health, provides a guide to finding specialists (https://rarediseases.info.nih.gov/guides/pages/25/how-to-find-adisease- specialist) in particular genetic and rare conditions.
• The Tuberous Sclerosis Alliance provides advice on finding and choosing a doctor (https://www.tsalliance.org/individuals-families/adults/how-to-find-a-doctor-a-guide-for-adults-with-tsc/). Although this advice is written for adults with tuberous sclerosis, much of it applies to people with any chronic health condition.
Additional resources for locating a genetics professional in your community are available online:
• The National Society of Genetic Counselors (NSGC) offers a searchable directory of genetic counselors in the United States and Canada (https://www.findageneticcounselor.com/). You can search by location, name, area of practice/specialization, and/or ZIP Code.
• The American Board of Genetic Counseling (ABGC) provides a searchable directory of certified genetic counselors worldwide (https://www.abgc.net/about-genetic-counseling/find-a-certifiedcounselor.aspx/). You can search by practice area, name, organization, or location.
• The Canadian Association of Genetic Counsellors (CAGC) has a searchable directory of genetic counselors in Canada (https://www.cagc-accg.ca/index.php?page=225). You can search by name,distance from an address, province, or services.